A young man loses a valiant fight. His world grieves. There are no words.
I will quote but a few, gleaned from his peers:
UPDATE 2 TO POST (an evolving project):
During the years that this family Lived (with a capital L) through the horror of this disease, there was a very special organization that helped them through. Friendsofkaren.org provides emotional, financial, and advocacy for children with life-threatening illnesses and their families, in order to help keep them stable, functioning, and able to cope. This organization made a huge difference in the lives of the entire family. If you are touched by this story and feel it in your hearts to honor this remarkable young man, you can donate here in memory of Tyler Seaman.
As always, The Chordoma Foundation continues to fight the fight for a cure every day. Their mission is is to improve the lives of chordoma patients by rapidly developing effective treatments and ultimately a cure for this devastating disease. They too, are a charity of choice for this family. You can read more about this disease here. If you so choose, Tyler’s family each has a fundraising page on their sight. You can donate through his mom here, his dad here and his brother here.
What do you want me to do, to do for you to see you through?
A box of rain will ease the pain, and love will see you through.
Just a box of rain,
wind and water
Believe it if you need it, if you don’t just pass it on
Sun and shower,
wind and rain
In and out the window like a moth before a flame
And it’s just a box of rain, I don’t know who put it there,
Believe it if you need it, or leave it if you dare.
And it’s just a box of rain, or a ribbon for your hair;
Such a long, long time to be gone, and a short time to be there.
– Robert Hunter, Phil Lesh
2 responses to “Time to Cry Tuesday – Cure Chordoma (update 2)”
Awesome, it’s a Dead Head! Grateful Dead for the win! Now I want to donate to this cause even more.
thanks john. he was a true lover of music.